Possible endometrial cancer - waiting is torture

I'm 52, been on hrt for 3 years. Stupidly just put my extreme bleeding and huge clots down to perimenopause. Mentioned it at my hrt review then got referred by gp for TV ultrasound. Still wasn't particularly concerned until the end  of that when sonographer said we'll refer you to gynaecology for further investigation,  if you haven't heard in a week phone your gp. That set the alarm bells off ! Turns out my endomitrium is 18mm  . I now have hysteroscopy this Thursday.   Of course I've googled virtually every sentence in the scan report that appeared on my patient access .... I'm alternating between panic and utter denial  ... 'it won't be me ... but its the waiting that is worse than the knowing ... I can cope with it if I know what it is exactly.  I know I've got more waiting ahead though as the results from hysteroscopy take 2 weeks .

Meanwhile I'm trying very hard just to keep busy and not think about it ... 2nd part of that sentence is almost impossible ! Xx 

  • Hi Louisa72,

    Welcome to Cancer Chat. It's never easy dealing with this uncertainty and waiting for information, and I know there will be many others here who understand this and who are going through something similar.

    I see that today is your appointment, so I hope it all goes OK. As you say, there will be a further wait for results, so try to take things slowly, a day at a time, and your approach of keeping busy should hopefully help a little.

    In the meantime, hopefully you'll get some more replies to your post here soon. You can also have a browse or search of the forum for other discussions and people to connect with, if you'd like to.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Thank you for your reply. I'd like to update on my experience of the hysteroscopy today.

    I attended the Hospital for my appointment and really couldn't fault the staff. They were really welcoming and kind from arrival through to leaving. The team that actually did the hysteroscopy were lovely. The main Dr explained everything from the report from my scan , to answering all my questions before she started the procedure. I was so worried about it being cancer and she reassured me that if she saw anything concerning she would be honest and tell me straight away. We also discussed how I would want to hear any biopsy results .  

    I won't lie , the procedure itself was a bit painful at times, and very undignified ! But the whole team reassured me throughout and explained everything as it was happening.  They constantly checked in that the pain wasn't too much and the nurse beside me was so very aware of how I was feeling from just checking on me the whole time and was really positive and supportive. They had trouble opening my cervix so I needed local anaesthetic to allow them to do this. It was short sharp pains which I was able to breath through , and again the team kept checking I was OK to continue.  She took biopsies which was like sharp period pains, but not as bad as I had expected . 

    I was very fortunate that she couldn't see anything visually that was concerning other than small fibroids which were not possible to remove. Before she started we had discussed using a mirena coil if the procedure showed it was possible so after the biopsies she again checked I was OK to go ahead , which I was. 

    Afterwards she took the time to talk through again what the procedure had shown, which was nothing concerning and she reassured me that she is confident that the biopsies will not be cancerous . Such a relief that I cried a little! 

    I'm a bit uncomfortable tonight with period like cramps but feel so much more positive and hopeful that a change to the coil for my hrt will take away my heavy bleeding symptoms. 

    I just wanted to share this so any other women going through the same stress that I've experienced since my referral 2 weeks ago, might take reassurance that it doesn't always turn out bad news and that nhs staff can make the procedure far better than you expect. I know everyone is different but I though it'd be helpful to share some positivity xx