Mum has a brain tumor...

Hi All,

I'm Nikki, in my 30's, 3 kids aged 13, 11 and 7. My mum is Sarah, 59. 

Mum went into A&E on the Fri 19/04/24 thinking she'd had a mini stroke (words slurring, face slightly dropping, intense headaches) She was in hospital for a week and had all sorts of tests (I'm struggling to recall what - at this time I wasn't making notes as didn't quite know what was going on!) including MRIs, tests carried out showed no stroke, but a lesion on the frontal lobe, after further scans we were told on the Tue 23/04/24 that it's a brain tumor/cancer.

Since then we were told that we'd have an "action plan" on the Fri 26/04/24 (she was discharged this day too) which was then pushed back to Mon 29/04/24 due to not having all the test results back. 

At the appt 29/04/24 (I was in the meeting via video call and didn't catch everything) they said: Brain tumor; Grade 3/4; 3x3cm. 

Two options : 'big op' take as much out as they can and then chemo or 'small op' take biopsies and treatments to "manage" it.

They needed to do further MRIs to see if it's in an area that would impact on her speech 'area'. Apparently because she's left handed her brain could be different and if the tumor is in the 'speech area' they won't be able to do the 'big op' as it would cause too much damage.

MRI scan booked for tomorrow 03/05/24 so they aren't messing about.

Wondering what the likelihood is that we'll find out more tomorrow at the MRI?

At what stage do we get a prognosis as such? After the op? 

Thanks, Nikki x

  • Hi Nikki, 

    What a stressful time it has been for your mum spending all this time in hospital going through tests and I am sorry you were informed it was a brain tumour. It must have been such a shock for you all and it must be worrying you to know that they wouldn't be able to do the big op as it might cause too much damage. At least things are moving fast. How did the MRI scan go? You may not know much more at this stage as MRI results normally take 1-2 weeks to come through but I am keeping everything crossed for you that you find out more soon and get a bit more clarity as to what the best treatment options might be for her. Do you happen to know exactly what type of brain tumour she has? Our website has a wealth of information on brain tumours and if you would like to talk to our cancer nurses and ask them anything about your mum's brain tumour diagnosis, feel free to get in touch with them on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm. 

    It might be worth asking your mum's medical team at what stage you would be getting a prognosis. It may well be that they will have a clearer picture after the operation and it may also depend on the type of tumour or position in the brain and many other factors as mentioned in our survival for brain tumours page. It's important too not to dwell too much on prognosis or statistics as these tend to be averages and so every individual case will be different. 

    This is bound to be such a difficult time for you and your mum and we're thinking of you both. Hopefully you will hear from other members of our community who have been in a similar place or supported a loved one who has been diagnosed with a brain tumour and they will be along shortly to share their experience with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator