Hi, I’m Charlotte, I’m here to look for anyone in a similar position.
my son Dan was diagnosed in December 22 with a brain tumour on his brain, completed chemotherapy and proton beam radiotherapy, has had a scan and is clear, this has been since August 2023, however he is still really struggling, he’s still not back at school full time, he has completely lost all confidence in himself, I’m lucky to get him in school for 5 hours a week, more often than not I’m called to go pick him up for one reason or another. He says he gets really bad headaches. I’ve mentioned this to all relevant healthcare professionals, and checks and scans are been done, however I believe that these are exaggerated, I have told his specialists this. I’ve requested many times for counselling/therapy but I’m told they can’t do anything without his permission, as he’s 15 it has to come from him and he is outright refusing. I just wondered if anyone has experienced similar and could give me some pointers as to what I can do or how I can help him? Thanks