Myeloma

My husband has been diagnosed with myeloma and he has tumours on the spine, he’s just started treatment. I don’t know how to say how I feel, because I know it’s my husband that’s ill but I am feeling depressed because I don’t know how to make things better. At the moment he’s sleeping all the time and feeling unwell, he’s also lost his appetite

  • Hi, My husband was diagnosed with smoldering Myeloma Feb 23. He has started with a lot of pain and extreme weakness in his legs and fatigue. He's going for an MRI next Sunday as the doctor thinks it's time to start treatment. I feel your pain when you say about not knowing how to make him feel better, I sometimes feel dead inside I know that probably sounds selfish when he's suffering but miss our life before so much. Seeing him suffering breaks my heart 100 times a day. I plan nights away now, in a hotel with a spa he can't walk far but we just relax and spend quality time together, he's only 52. He has also lost his appetite like you say and has lost lots of weight, he wouldn't eat if I didn't put food down. Sorry didn't mean it to be so long, got carried away. Never shared with anyone before. Take care of yourself, Jayne x

  • Hi Jayne,

    Thanks for your reply, I’m glad I’m not alone, I have all those feelings you’re experiencing.

    I feel guilty feeling like this because he’s the one I’ll and in pain, it’s his 60th birthday this year an I can’t even look into celebrating it, we were going away to Portugal but I’ve moved it to next year, all being well, but I may have cancel.

    yesterday he spent all day in bed, what a life for both of us