Need advice just been diagnosed with vaginal cancer

Hi, I'm 44 and I live in Yorkshire I have 2 children 18 and 11 and have been married for 20 years this year.

In January I found a hard lump on the left side of my vagina sex was painful and I would bleed very time. I had previously been to doctors with a few symptoms like being very dry and bleeding after sex but it was all put down as being perimenopause. Then when I found this hard red lump I went back and the doctors.

The doctors had no idea so they referred me to Gynaecology on a fast-track pathway.
I was then sent for a colonoscopy where they took swabs and a biopsy.
Then I got a call the next morning That they wanted me back that day.
 I saw a surgeon who didn't like the look of it so decided to remove it.
They thought at first that it was a Bartholins Cyst that had already ruptured but hadn't naturally gone.
On examination, she found another cyst behind the old one removed both and sent both away to be analysed.
This then came back as cancer which was in February since then I have had an MRI chest X-ray 2colopcopys and a PET-CT scan.
I have been told it is in my lymph nodes but I don't know how many I have no idea what stage I have no idea on anything I have cancer and that's it. 
I know the tests take time and the waiting is the worst and the not knowing but I found it in January and next week April and have no dates for anything.
I'm terrified, annoyed, upset that I'm not been told anything.
  • Hi Cdl,

    I'm sorry to hear you've been waiting a while now to get answers and I can of course understand your feelings about this. I'm not sure if you were given a timescale for when to expect to hear more. If so and it's gone beyond that, you could chase it up with your doctor or the hospital - likewise if you weren't given information on when to expect to hear more.

    It's difficult to advise beyond this, only to say that we are always here for support if you need it, and I hope that the forum can be helpful for you. Hopefully you'll get some more replies to your post here soon, but otherwise do have a browse or search of the forum for other relevant discussions and people to connect with, if you would like to.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator