Hello. I have Stage 4 hyalinising clear cell cancer of thymic origin. There is no treatment for this diagnosis. I was initially diagnosed with lung cancer and had 4 cycles of chemo with 30 days of radiotherapy. The cancer spread to my right lung and I had a partial upper right lobectomy in Oct 2022. I still have uncomfortable (but not now painful) neuropathy around the scar, under my boob, around my ribs and on my upper chest. I use DermaCool. It is a lotion that gets rubbed in and makes the area feel v v cold. It is really effective for the neuropathy. I’m in the IK and it can be bought OTC (it is expensive) or by GP prescription. I’m sorry to hear you have such awful care by your GP and oncologist. This must be very frightening. 

Hello. I have Stage 4 hyalinising clear cell cancer of thymic origin. There is no treatment for this diagnosis. I was initially diagnosed with lung cancer and had 4 cycles of chemo with 30 days of radiotherapy. The cancer spread to my right lung and I had a partial upper right lobectomy in Oct 2022. I still have uncomfortable (but not now painful) neuropathy around the scar, under my boob, around my ribs and on my upper chest. I use DermaCool. It is a lotion that gets rubbed in and makes the area feel v v cold. It is really effective for the neuropathy. I’m in the IK and it can be bought OTC (it is expensive) or by GP prescription. I’m sorry to hear you have such awful care by your GP and oncologist. This must be very frightening. 

Hi Corrie,  you're so brave, it makes me feel whimpy. A little bit about myself, I live in a small village on the edge of the Lake District,  nearest town is Whitehaven. I live in a bungalow with my dog Theo, we have views of the fells, forests and farmland. It's 100 yards from River Ehen, 20 minutes walk to a small lake. I'm so lucky I've brilliant neighbours even though I've only lived here a short time. They help with gardening, walking Theo, shopping and general chores and minor repair jobs when I'm having bad days.  Sue (neighbour) even drives me to Newcastle for hospital appointments  as I struggle to drive that far. I hope you have a good circle of friends and family to help you. Thank you for recommending DERMACOOL  I'll order some online. To date I've spent a fortune on various aids for pain relief none have helped. 

It would be good to have a natter on the phone, if you want to exchange numbers by private message. Usually dog walking before 10 am and out 2pm for about an hour. 

Best wishes  Yvonne