Adult child has incurable cancer

Hi. This is my first post. Last year our daughter, 39, who is our only child, was diagnosed with stage three cervical cancer. She underwent chemotherapy, radiotherapy and brachytherapy. It was very hard for her and she ended up spending a month in hospital. Her recovery was slow, but she seemed so much better afterwards, so when she went back to see her consultant we were quietly confident that she would be given, if not good news, then tolerable news. We were devastated to be told that the cancer had spread to her liver, and is now incurable. With treatment she could live for two years or more, but would need chemotherapy once every three weeks. Her consultant wouldn’t talk to her about declining treatment. She is struggling with the thought of putting herself through it, not just losing her hair, but all the other side effects, and is finding it difficult to find out what will happen to her if she doesn’t go through with the chemotherapy. I have some questions, and I’m hoping I’m in the right place

I wonder if anyone here has gone through the treatment. I know everyone is different, but the list of side effects for the three drugs is horrendous, and there’s no indication of which ones are common or uncommon. 

Has anyone declined treatment, and what was that like 

How do I cope with the prospect of losing my only child. We are very close, and I can’t imagine life without her. 

Thank you in advance for your responses 

  • Hello AngiOH

    I'm so very sorry to hear that your daughter was given the news that her cancer is now incurable. Undoubtedly this will have been devasting for you all to hear and I can understand that you have many questions about what happens next. 

    It's unfortunate that your daughter's consultant wouldn't discuss all options with her at the appointment. Does she have a clinical nurse specialist that she can contact? If so then do encourage her to get in touch with the nurse for some advice and support. 

    Alternatively, you are welcome to call our team of nurses to talk things through with them. I know they will be happy to listen and offer any information and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040 (excluding bank holidays). 

    If it's helpful at all then we have some information on our website about cancer drugs and it does list which side effects are common, occasional, and rare. I know that you've already mentioned this in your post but try to remember that not everyone will experience all side effects and everyone's experience with the treatment is different. 

    Obviously, there are going to be some very difficult times for you all in the coming weeks and months. Please know AngiOH that we're here to listen and will do our best to support you so keep in touch if it helps to have somewhere to ask questions, talk with others, or simply put down in writing how you're feeling. 

    Sending you both my best wishes, 
    Jenn
    Cancer Chat moderator