I was diagnosed with cmml last may. On watch and wait.

Still well, to old for stem cell transplant. Blood count rises and falls but the trend is stable. Came out of the blue,  symptoms started October 2021 diagnosis may 2023. My neutrophils and platelets are on a roller coaster.

Thank god I posted on this forum. I seem to be very well in comparison to fellow sufferers. I did have a shingles jab a while before diagnosis, but I believe my symptoms started at the end of 2021 so luckily for me no side effects from shingles shot. My first diagnosis was skin cancer due to the tiny red pin pricks on my lower legs fortunately I asked for a biopsy and this proved capillaries were slightly leaking into skin. At the time I was taking clopidogrel blood thinners but because platelets were low haematology took me off them. Soon after the tiny blood specks disappeared. I suffer thrombocytopenia and neutropenia plus monocytes have risen. At diagnosis I had 10 abnormal levels on my blood count I now have 5. So basically at the last blood test my blood is in better condition than a year ago. Unfortunately I have osteoarthritis in both shoulders and that has been dreadful. X ray revealed a bone spur in my right shoulder. All part of ageing I suppose. CMML apparently has had nothing like the research of other leukaemias

Best wishes to all

Uncle.

Thank god I posted on this forum. I seem to be very well in comparison to fellow sufferers. I did have a shingles jab a while before diagnosis, but I believe my symptoms started at the end of 2021 so luckily for me no side effects from shingles shot. My first diagnosis was skin cancer due to the tiny red pin pricks on my lower legs fortunately I asked for a biopsy and this proved capillaries were slightly leaking into skin. At the time I was taking clopidogrel blood thinners but because platelets were low haematology took me off them. Soon after the tiny blood specks disappeared. I suffer thrombocytopenia and neutropenia plus monocytes have risen. At diagnosis I had 10 abnormal levels on my blood count I now have 5. So basically at the last blood test my blood is in better condition than a year ago. Unfortunately I have osteoarthritis in both shoulders and that has been dreadful. X ray revealed a bone spur in my right shoulder. All part of ageing I suppose. CMML apparently has had nothing like the research of other leukaemias

Best wishes to all

Uncle.