Prostate Cancer Diagnosis: Active Surveillance

In January this year I had a PSA result showing a level of 13.2 and following MRI and Biopsy, have been told that I have cancer. Just hearing those words were a shock as one never expects it.

So far I have only been seen by the Urology consultant who was very reassuring and was quick to point out that I am on the lowest level of the Gleason ratings (3-3). I am now following an active surveillance process which he assures me is the right course but I cannot stop thinking about speeds of progress and all the time between checks.

Whilst my PSA levels were gradually going up, I was concerned, but it didn't affect me mentally. Interestingly I now find myself thinking about the future much more and wondering if 3 monthly blood tests are the way forward or whether to opt for more direct treatment. It has without a doubt changed my perspective on life as a whole.

I would be interested to hear from others who might be at the start of a similar journey.

  • Hello CG57, 

    I am sorry to hear about your prostate cancer diagnosis - I can imagine it was a shock to you but I am glad that the urology consultant was reassuring and pointed out that you are on the lowest Gleason rating. Our website explains what happens during active surveillance and I hope that it will reassure you that you will be carefully monitored. If you have any questions, don't hesitate to give our cancer nurses a call on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm and they will be happy to answer any questions you might have about active surveillance for example. 

    I hope you won't mind but I have added the words 'active surveillance' to the title of your thread. This will hopefully attract responses from others who have been under active surveillance too for prostate cancer and I hope that they will be able to share their experience with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator