Hello Everyone,

I was diagnosed in May 23, following a MRI with contrast..(no biopsy done) with two brain tumours. One I was told is a sub ependymoma, which is supposed to be benign and the other a Glioma. I have had three monthly scans up until 3rd February 24. I’m now going to have six monthly scans. I initially went to hospital to establish the cause of perhearal Neurophy symptoms and spondylolisthesis (severe back pain)

 I’ve been told by my Neuro Surgeon my tumours are accidental findings and they leave sub ependymoma well alone. I’m in the dark as to whether the Glioma is cancerous. I was told it’s 5 Mm in size. I don’t know if that means it not yet at a size where it’s ca passed as cancerous!  I’m also  it’s to dangerous and risky to perform a biopsy, or to operate, which I’m not happy about , as it seems they have given up on me without trying any form of treatment. I have queried whether it to do with my age(65) or my health issues, (Hypertension, sleep apnoea) I was told no.

I have no idea at this stage whether I have cancer, where my life is heading , what actions to take. If I should try immunotherapy, which is very costly, or if I should join trial?? I’m stress, worried, anxious and scared. What adds to my frustration I have very little support from my husband, as he prefers not to talk issues through.

is there anyone out there who has the same medical condition, who are just under careful surveillance, or observation by the medical profession?