Hi Bgsnowy,

A very warm welcome to our forum.

I am so sorry to hear about your diagnosis. I can fully understand why you're not looking forward to your chemo later today, when you had such a nasty reaction last time. I hope that it's not as bad this time.

I am afraid that the uncertainty of what life holds is something that everyone with a cancer diagnosis has to face. It certainly does turn our lives and that of our families, upside down. This is something that we all deal with in our own way. Breast Cancer Now produces a number of leaflets, which might help you. They also run classes on "Moving Forward". These are helpful in changing our perceptive of the future. If you are still finding it difficult to come to terms with things after this, there are a number of cancer charities which offer free counselling. Maggie's centres offer this service, among many others and they are dotted around the country - details on their website.

I lost my mum to secondary breast cancer 26 years ago. Since then, I have had 2 bouts of breast cancer myself, but that was 14 years ago now. Treatments for secondary cancer have improved tremendously since then. Sadly, in mum's case, there was no treatment available at that time, whereas now, there are a number of options.

I shall be thinking of you tomorrow and hope that it all goes well.

Please keep in touch and let us know how you get on.

We are always here for you.

Kind regards,

Jolamine xx

Thank you so much for your response ️

I've also recently been diagnosed with secondary TNBC (mets to lungs).  I've found a couple of Facebook groups really helpful - search for Triple Negative Stage 4 and apply to join.  One's in the UK, and one's in the USA but it's full of lots of useful advice and you can get lots of answers to questions.  I'm also struggling to come to terms with it all, some days are better than others.

What chemo are you on?  I'm on carbo/taxol and I find the week with carbo in really rough - fatigue keeps me in bed for most of two days a couple of days after infusion.  The taxol I get on days 1 and 8 and that isn't so bad so at least I get 2 good weeks out of every 3.

Wishing you all the best x

Hi Flamingo_flyer.

Thanks for the info on the groups you've mentioned. I'll have a look at them.

I've only just had my second round of treatment. After my first session I had an infection, so I'm not really sure how my treatment is going to make me feel. I guess I'll find out very soon.

I've been put on a research trial. Dervalumab & datopotamab durectecan.

My oncologist seemed to think this was my best option. It has already reduced the size & amount of pain from my primary, which is very promising.

This treatment will be every 3 weeks until it stops working and then I guess I go down the standard treatment route.

I think once I get in a routine with my treatments I will will be able to work on getting my life on track again.

️