I'm sorry to hear that you've recently been diagnosed with myelofibrosis. It's understandable that this may be a worrying time for you and that you may have questions about how this could impact your daily life.
We have some information on our website about myelofibrosis that you might find helpful and I'd also suggest having a look at the information available on the Blood Cancer UK website. We do have a few forum members who have recently posted that a loved one has been diagnosed with this condition. You can read those posts by searching for the term myelofibrosis in the forum search function at the of the page. However I'm sure that you will be able to connect with others who are living with this diagnosis via the Blood Cancer UK online support group so it's worth having a look there as well.
If you'd like to chat things through with one of our nurses you're very welcome to give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040.
I hope that this information helps Tomo26. Do keep in touch and let us know if we can be of help again.
