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Endometrial cancer stage 2, grade 3 metastasis lesion to right lung

Bhavna02
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Hi there,

I was diagnosed with Endometrial cancer in July 2022. By August 2022, I under went a full radical  hysterectomy with BSO and bilateral sentinel pelvic lymphadenectomy. My consultant who was amazing and with her team my recovery was swift and well managed. Six weeks after the hysterectomy, I started 25 daily sessions of Radiotherapy. This started of well, but by week 3 the daily traveling, waiting around for each appointment started to take its toll. But each day you go in, you see so many others suffering and just getting on with life, and that's when your inner strength talks you into just carrying on, be grateful life could be worse! Final treatment was 3 sessions of Brachytherapy.

All was going well, until Dec 2023, when a CT scan showed a metastasis lung lesion. I have to say it was a shock to us all, as I seemed to be getting back to my normal self, raring to go with a wedding  to plan for in August 2024, for our youngest daughter.

The new treatment plan has started and am in my 2nd dose of  Chemotherapy, combination of carboplatin and paclitaxal, which is given intravenous every 21 days.

The side effects are really getting to me. Day 3 onwards it's the worst with joint pains, no energy, can't seem to relax and of course the horrid sick feeling. Are there any specialist places where I could contact a massage therapist? What other help can I get especially mentally?

Anyone with help and advice, would much appreciate it.

  • Welcome to the forum, Bhavna02.

    I'm sorry to hear about the challenges you're facing with your cancer treatment and the side effects you're experiencing from chemotherapy.

    Regarding your question about contacting a massage therapist, it might be worth reaching out to your healthcare team or the centre where you're receiving treatment to inquire about available services and resources. They may be able to provide recommendations or connect you with a qualified massage therapist who has experience working with cancer patients.

    In addition to complementary therapies, there are various other forms of support you may find helpful, both mentally and emotionally. Consider seeking support from a counsellor, therapist for cancer patients. These resources can provide a safe space to discuss your feelings, fears, and concerns with others who understand what you're going through.

    Hopefully others who have faced the same situation will be here soon to chat with you as talking with those who can understand does seem to help.

    Wishing you strength as you continue your treatment,

    Renata, Cancer Chat Moderator

  • Offline in reply to Moderator Renata

    Hi Renata

    Thank you so much for the above. Really appreciate it, and will ask the oncologist team looking after me.

    I am looks into s to king help with a therapist, but I keep on avoiding making contact.

    Again I think I will do as you have mentioned and seek further advice from the oncologist team and get the motion moving.

    Thank you

    Bhavna02

  • Offline in reply to Bhavna02

    Hi Bhavna02

    i totally understand what you’re going through.

    I was diagnosed with endometrial cancer in 2017. I too had the full hysterectomy but no more treatment then. In January 2022 I knew I didn’t feel right and with the help of my brilliant GP I found out my cancer had recurred in my pelvis, so five weeks of radiotherapy which made me feel so tired and other side effects which dragged me right down. I had to push myself to get out of the door each morning. Treatment shrank the tumours yay! Then imagine my shock to discover in July 2022 that the cancer had metastasised to my lungs, so six cycles of carboplatin and paclitaxal every 21 days, which ended Feb 2023. 

    I can honestly say it was the most horrible experience. I tried to explain to my husband, family and friends how I was feeling but there are no words in the dictionary to cover it. Even the worse swear words don’t do it!!! So I’m there with you in spirit. You will feel unwell. You will feel upset. You will feel dog tired BUT you WILL get through it and come out the other end fighting!! Keep saying each morning I’VE GOT THIS. You have…

    I’m now on immunotherapy which started September 2023. I felt very down and knew inside that I needed to talk to someone but I didn’t want to take the first step because I thought I should be able to fight this thing on my own. I’m stubborn like that! But I did in the end through my specialist nurse team who are fantastic. I had my first session with a cognitive behavioural therapist this week. It was so helpful to talk to someone separate from me. There were tears, tissues and a hug but I left there feeling uplifted and a little lighter in spirit. My words to you are - go for it! I don’t think you’ll regret it.

    I realise most of this post has been about me! But I just wanted to show you there are more of us out there who understand what you’re going through, are going through the same awful experiences and can send you messages of support and love.

    Take care of yourself but most of all - be kind to yourself…

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