My wife may have ovarian cancer

Back in the middle of January 2024, we did think that it was just another normal day but my wife (who is 55 years old and had been married to since 1995) had told me that she had thought that she was having another period despite the fact that she had her menopause back in 2020. I have to admit that I am not a doctor but know that if something is not right with your body then it should be checked by a GP to rule out a cancer diagnosis. That is exactly what I had told my wife to do where she had also bloating, cramps in her lower abdomen and needing to use the toilet more again. She was also diagnosed with irritable bowel syndrome about 15 years ago so she had naturally assumed that she had another flare up of that.
To cut a long story short, her GP had referred her to have an ultrasound scan where they had seen that almost everything was normal where there was no sign of endometriosis and the condition of her uterus did seem all fine. She had her ovaries checked where the left one had seemed normal but the right one was enlarged which the radiologist had identified this as a complex ovarian cyst which was septations, had a mixture of liquid and solid components and was also hyper-vascular. This was where the bombshell hit that this was identified as a ‘cancer alert’ where the largest cyst was nearly 8 centimetres across. She also had a CA125 blood test which the result was 88 (above the 35) that had warranted further investigation for suspected ovarian cancer. She has also had other tests for bladder, colon and blood tests which have come back as normal.
However, she has had further checks including a CT scan and a physical check and the nurse from the department had started talking about cancer treatment options such as chemotherapy and surgery and that literally has really put the wind up me. She is also due to have a biopsy but that has yet to happen although the NHS is required to stick to its 2 week rule on diagnosis and treatment. Her GP did tell her that she should not worry about this whether this was an ovarian cyst or cancer and it will be treated with all sorts of drugs and treatments that currently available. I have also been told that the NHS is the best in the world when it comes to emergency treatment.
My wife has been in regular contact with the gynaecology department but the stream of bad news keeps on coming in and is currently awaiting to have a biopsy, not to confirm the presence of cancer but the type that it is such that they can personalise her treatment plan. The latest being that they want to investigate further is the ascites in her abdomen contain cancerous cells. It is not something that I would want to hear and are desperately hoping that the medical team can at least bring some more hopeful and good news soon.
Whilst I am confident that the surgeon and his team who is handling her case can give the treatment that she needs, the biggest issue that is causing the worst anxiety is the unknown. I try not to fall into the trap but thinking about all the ‘what if’ situations and try to avoid looking on the Internet to allay fears. Some of these fears are ‘being told what I had expected all along’ and the prognosis of how successful the treatment will be such that any cancer can be into remission or even be cured.
I am also told that I need to be strong for her which I am trying to do but seeing the partner that I have been with since 1990 and having to see her go through the treatment plan even though it may save her life is something that I am really fearful over. I had a less severe scare with her a couple of years ago where she had some rectal bleeding which the first thing that had come into my mind was colon cancer but this was ruled out and was found out to be from constipation due to irritable bowel syndrome. Whilst I have hoped that I would never had faced seeing either myself or my wife have a cancer investigation (which is what this is at the moment) but my gut feeling is that this is what she has got.
I would like to know if there is anyone else who has been through what I am going through at the moment and how they had managed dealing with the diagnosis, the treatment including its side effects and how their lives have adapted to the new way of life.

  • Hello cjb2, 

    This is such a challenging time for you and your wife as you are still waiting for clarity on what it is going on. You are right though when you say that you mustn't fall into the trap of thinking about all the 'what ifs' and it's best indeed to stay well away from the internet as this will often lead to more questions and uncertainty than give you clear answers. Or if you do some research, stick to reliable sources like Cancer Research UK's page on ovarian cancer but resist the urge to google anything.

    I hope that you will get to talk to many of our members who have been through what you are currently going through and that they will be along shortly to tell you more about their diagnosis journey. As you say it's all the unknown that is causing so much anxiety and I hope that she will be able to have the biopsy soon and that it gives you some definite answers. 

    You are obviously a very loving and caring partner and I am sure she appreciates having you by her side and it is normal to be a bit fearful when you have to witness the person you love and cherish the most go through all this. I just wanted you to know that you are not alone and we are all there for you anytime you need to talk to others who can truly understand the anxiety of waiting for a diagnosis. I thought I would also share with you these helpful tips to help you cope while waiting for important news. 

    I am keeping everything tightly crossed for you and your wife in the coming days and weeks.  Keep us updated on what you find out if you get a moment.

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Thanks Lucie. Much appreciate your response.

    The good thing now is that things are moving forward and she has got a biopsy next week after we had to push the gynaecological department for a date when this was going to happen. Fingers cross that if it is cancer then it has not spread too far away from its primary source.

  • It has been a year since my wife had initially discovered that she was diagnosed with the serous carcinoma ovarian cancer which is the most common but also the most deadly one as well. She had started her chemotherapy back at the end of March 2024 where she had been given Paclitaxol and Carboplatin as well as the immunotherapy drug Bevacizumab (Avastin) which had continued until November last year. During this time, her CA125 levels had remained steady at around 9 or 10 but her most recent blood test had indicated that this had climbed to 26 at the start of 2025. However, her oncology doctor had indicated that it is still below the normal level of 35 which would prompt further treatment but this is against the backdrop that he had told her that condition is treatable but incurable. Unfortunately, this has had a significant bearing of her mental health which has had major implications for her immediate family life and much of this was down to diagnosing her symptoms and prognosis on the Internet. Although her oncology doctor has given her a 'many years' prognosis, she is due to have another CT scan very shortly with the possibility that she may need further chemotherapy treatment before being put on PARP inhibitors. It has been incredibly hard, not because of the cancer diagnosis but the way that it has affected her mental health and feels that she wants to fulfill things in her life. Has anyone else experienced this sort of behaviour from their partner who struggles to cope with a cancer diagnosis?