Hi Mich1,

Welcome to Cancer Chat. I can understand this must be a lot to process - I hope you are getting on OK, and that it's not too long for you to wait to hear more about the next steps.

I hope you don't mind but I have edited the title of your post, to hopefully encourage more replies, particularly from others with similar experience.

You may also wish to search the forum - using the bar at the top of the page - for other potentially relevant discussions and people to connect with.

If you'd like information about clinical trials, we have a page on our website about this. Likewise we have a page about private treatment.

In the meantime, hope that this forum can be of some help to you.

Wishing you all the best,

Ben
Cancer Chat Moderator

Hi

I'm sorry to hear you're going through this. My fiance was diagnosed with exactly the same in June 2023. He had 5 weeks of radio and chemo to reduce the tumour because it was too close to the bladder wall so wanted to shrink it and make it easier to remove.  He had the op in January and having been told he may need a temporary stoma bag, he was lucky enough to avoid this. We are now waiting for him to start 3 months of chemo just to ensure they removed all the cancer before rescanning. We hope that's the case, but with cancer and this journey, you just have to hope for the best and try and stay positive. 

We did consider private treatments but although undoubtedly slower on the NHS because they are so overwhelmed  the treatment and dedication of everyone in the NHS has been wonderful. 

I hope you get your dates to start your treatment soon, take care of yourself.

Thank you Ben

He was pretty lucky, as the weeks went on he felt tired, but that was all