I am actually 18 months post treatment. I had 8 weeks of Chemo/RT and surgery. Wordsc cannot ever explain what it was like. I still cannot eat. Have no salivary glands or taste at all. I spend hours a day on a pump. I am so low, so fed up I just dontvknow what to with myself. Food is such a intrinsic part of our lives and that has been removed. I retired due to the Cancer, so treatment followed by retirement has devastated me. I was a full time, Head of English, busy busy, now nothing really. I dont sleep, wake up when I drop off in a panic because I can't swallow and myvmouth is full of muck. I don't think this will change now. This insistent rain and cold is bety difficult to manage too.
I'm sure sure there are thousands out there like me, what do you do. Pauline
