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HPRCC

Veronica-F
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Hi  I'm Veronica-F  I'm 67 and I have hereditary papillary renal cancer. I've been looking for information and research internationally and in the UK as it seems quite rare, and the fact that I've also had a different type of renal cancer in the past makes me feel even more solitary!

I'd like to know of any chat/ support groups for hprcc patients.

Parents

  • Hi Veronica-F,

    Welcome to Cancer Chat. Firstly, I hope that the forum can be useful for you, even if you aren't able to find others with a very similar situation to yourself.

    Do speak to your doctor to see if they can point you in the direction of any relevant support groups, as they may be best placed to do this.

    You are also welcome to post in the 'Ask the Nurses' section of this forum, in case they know of anything.

    Otherwise, hopefully you'll get some more replies to your post here soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

Reply

  • Hi Veronica-F,

    Welcome to Cancer Chat. Firstly, I hope that the forum can be useful for you, even if you aren't able to find others with a very similar situation to yourself.

    Do speak to your doctor to see if they can point you in the direction of any relevant support groups, as they may be best placed to do this.

    You are also welcome to post in the 'Ask the Nurses' section of this forum, in case they know of anything.

    Otherwise, hopefully you'll get some more replies to your post here soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

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