We have a number of members who are living with ET who post on the forum from time to time. You may be able to connect with some of them by entering the term "essential thrombocythemia" in the forum search box at the top of the page. You might also like to have a look at the charity website Blood Cancer UK. They also have an online community as well as a peer-to-peer support service.
We have some information about ET on our website which may be of help. If you'd like to talk with one of our nurses at any point you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm.
I hope this helps you connect with others who are living with ET. Keep in touch Maureen and let us know how you're getting on.
