Hi everyone, i have been diagnosed finally after first going to my dirs in August with a rear cancer leimyosarcoma. I just had back pain to start with and ended up being told in A&E i had a pulmonry embolism. The next day i had further scans for this and saw a specislust, but her face told me it was something else. As is the norm i was referred on for more investigations. I was finslly told in Sept i had cancer. It had spread to my lungs and my back pain was tumors on my spine which have crushed my vertebrae, but they were not sure what to do. It would need to be decided which team would take the lead as they havent yet been able to confirm where the cancer had started from.

I had had a biopsy which the wounds didnt heal and ended up back in hospital to sort them out and have only just stopped needing the dressings to be changed as they have finally healed.

Just after xmas i was told by my macmillsn nurse to go to A&E for an emergency scan on my back,  as my recent scan was of concern and the stability of my spine and the crushed bones on my spinal cord, i should make it their problem, the hospital will have to do sonething for me. All this time since august apart from 1 dose of radiotherapy at the time as a precautionary matter on my spine, ihave had no treatment and just prescribed pain relief.

After this stay in hospitsl i finally had the cancer confirmef and a treatment plan. Sadly i have to live with it, i canniot be cured. I have just got a brace to wear to help stabilise my spine

Throughout this time i have haf uos and downs the inevitable tears and most importantly the support of my husband, sister and parents all trying to be supportive in their  own ways. I feel so alone though. I don't want to burden them with how feel, yes they ask but i put s brave face on things. My dad has had bith bladder znd bowel cancer and is truly an inspiration, but i am really struggling to cope. Has anyone any advice to get through this?