44 years old multiple myeloma diagnosis

Hi guys , last Monday I played tennis and that evening had a very dehydrated wee dark and funny smell. On Tuesday I went to hospital with a suspected kidney stone. It was a very dull pain but having seen my brother go through it last year I wanted to get ahead of the real pain so I went to A&E to get a painkiller/ relaxant and after half an hour I felt absolutely fine. The doctor asked me if I wanted to have a CT scan to see where it was positioned. I raised concerns that it might increase my chances of Cancer but she said the risks were justified. So I went and after talking with the radiographer turned back saying that I wasn’t going to do it. 15 minutes later having spoken again with the A&E doctor I went back and did the scan. Multiple lucencies in my pelvis. 

That’s when I started to feel the gloom start. “It could be xyz or it could be cancer”. 

I was told to return on Friday to discuss my blood results. On Thursday I received a message out of the blue saying that an appointment was booked for me at MacMillan Cancer next Wednesday. The shock of my life. 

I then got a call from Haematology at the hospital asking me to come in for a chat where I was told my Kappa was at 15000 and my Lambda at 2500. This meant nothing to me at the time, but I was presented with no other option but immediate Chemo and a stem cell transplant in 5 months time. There was talk of a  The shock of my life. Survival rates are median and I’ve read the most 

Its worth saying that I never felt better or fitter than just before the moment I got that message. I thought I was the picture of health. I have a 3 year old daughter and a one year old son. Needless to say I am desperate and I don’t know what to do. I’m awaiting the bone marrow biopsy and whole body scans.

If there’s anything you can share with me to strengthen my resolve, help me to get through this difficult stage and give me some perspective it would be much appreciated. I have not slept for a week! 

  • Welcome to our forum, Kezza123.

    I'm sorry to hear about what you're going through. 

    Facing uncertainty and the unknown can be incredibly challenging, but try to take it one step at a time. Waiting for test results can be agonising, but focusing on the present moment and the support around you may provide some relief. Consider discussing your concerns and fears with your healthcare team, as they can provide more information about your specific situation.

    Remember that it's okay to seek a second opinion if you feel the need, and connecting with others who have gone through similar experiences might offer valuable perspectives and coping strategies so I hope you'll find the support you seek among our members. 

    The other thing I wanted to mention is that if you feel like asking some questions to our team of nurses, they'd be happy to talk things over with you Monday - Friday between 9a.m - 5p.m on this freephone 0808 800 4040.

    Last but not least, please remember you're not alone, there is always someone here if you feel like a chat.

    All the best,

    Renata, Cancer Chat Moderator