Hi I had primary gist removed from duodenum last year now got liver metastatic cancer been on imatanib for 8 month but growing again waiting to see next step anyone else got gist ??
I'm sorry to hear about your diagnosis. It's understandable that this may have been a difficult time for you.
We do have some information about GIST on our website but you'll be able to find other posts where people have mentioned GIST or imatinib by using the forum search function at the top of the page. Hopefully you will be able to find others who have been through similar experiences and chat with them.
If it would help to talk with one of our nurses at any point you're welcome to contact them on 0808 800 4040, Monday to Friday 9am to 5pm.
