Hi Mel

ive also had a mixed response and not what I would have expected from so called friends.. some  have not bothered to message, send a card or ask l am..  

i was cabin crew for many years and spent a lot of time in the sun well before we understood the effects of melanoma.. I’ve had lots of people say well it was only a mole… nothing surprises me any more.. 

I lost my Mum during in covid and have missed having her around to share my worries.. 

at least there are quite a few support groups, which have helped me  x

Hi yes I have the braf+ mutation, treatment has been up and down, my 1st 2 doses of ipi/nivo put me in hospital twice once with Stage 3 liver failure and then ulcerative colitis which is still ongoing since then I have been on single nivo it definitely causes fatigue and skin itching, sickness and my arthritis pain is worse, I have lost over half of my hair but it was very thick so I still look okay, generally I am doing pretty well I lost a bit of weight too as my appetite is poor have to force myself to eat sometimes, don't be too worried about treatment I'm sitting having mine as I type this but I know the weekend I will want to sleep or I won't be able to sleep that's another side effect sleep I either sleep well or can't sleep for a few days