Hi I have stage 4 melanoma I'm classed as terminal because after nearly 2 years of treatment the tumor refuses to shrink anymore I am probably going to have another 2 years of treatment, mine came back after just a few months, stay positive treatment is amazing now my oncologist says it what is keeping me stable best of luck with results if you want to chat I'm available 

Hi I have stage 4 melanoma I'm classed as terminal because after nearly 2 years of treatment the tumor refuses to shrink anymore I am probably going to have another 2 years of treatment, mine came back after just a few months, stay positive treatment is amazing now my oncologist says it what is keeping me stable best of luck with results if you want to chat I'm available 

Hi and many thanks for your positive  reply.. 

MDT meeting today and then another CT scan followed by appointment with consultant and referral to oncologist to discuss treatment. Almost certain I’ll be offered immunotherapy for -2 months, which I’m nervous about.. 

Do you have the gene mutation..? 

Just wondered how you are finding the treatment.. hope uiur continuing to stay healthy..

Good luck with your treatment. Long may it continue to work x

Hi yes I have the braf+ mutation, treatment has been up and down, my 1st 2 doses of ipi/nivo put me in hospital twice once with Stage 3 liver failure and then ulcerative colitis which is still ongoing since then I have been on single nivo it definitely causes fatigue and skin itching, sickness and my arthritis pain is worse, I have lost over half of my hair but it was very thick so I still look okay, generally I am doing pretty well I lost a bit of weight too as my appetite is poor have to force myself to eat sometimes, don't be too worried about treatment I'm sitting having mine as I type this but I know the weekend I will want to sleep or I won't be able to sleep that's another side effect sleep I either sleep well or can't sleep for a few days 

Thank you my reoccurrence was found by me doing my skin check but mine was in my front abdomen so when you moisturize you body feel for bumps not just checking lymph node areas feel everywhere, also best of luck with the lump removal I have had one took out my groin it was a cyst and a lymphoid under it xx