Welcome to Cancer Chat. It seems like there aren't too many relevant discussions on here about this unfortunately. However hopefully someone with similar experience will see your post and send a reply.
Aside from this, I hope that the forum can be of some support to you, and we're always here if you need it.
I am sorry to hear that you are finding it tough going on Enhertu. I haven't seen anything on the forum about this treatment. This is possibly because it is one of the newer treatments for people with HER 2 breast cancer, or with metastases and has mostly been used in trials up to now. No doubt, we'll get more enquiries about this soon, so it would be helpful to find out more. Can you please tell us a little about your cancer and what problems you are experiencing?
Please keep in touch and let us know how you get on. We are always here for you.
Thank you for your kind words. My cancer has been ongoing since June 2011 with repeated recurrences. It matatised in 2015 when it was discovered in my right lung. Since then agin I’ve had four recurrences in the lung loosing 20% of it. This last recurrence again is in my right lung with several tutors and spread to my lymph nodes, which in itself is very scary. With this latest recurrence I was changed from phesgo to Enhertu which is nothing like, in-terms of side effects, like phesgo for me personally. It’s more like proper chemo side effects although it’s not a full on chemo as it has Herceptin attached to the chemo drug in it, and because I’m on this long term I think and have been warned by my oncologist I will loose my hair. But for now I’m using the cold cap, so I’m only getting thinning. The other side effects for me have been incredible stomach upset, loss of taste and appetite, constipation and extreme tiredness. My cancer journey has been a long and tough one so far! Here’s hoping Enhertu can give me some peace from it for a few months if not years! Hope this helps someone! Xx
You have really been through the wars haven't you? I am glad to hear that you are managing to preserve your hair with the cold cap, but sorry to hear about the side-effects. I see a new post asking if Enhertu is available on the NHS as yet. It is under the category "Living with Cancer!", and is from Treefield. You might find it helpful to join in this conversation.
How long have you been taking this for and how soon was it before you began to notice the side-effects? Here's hoping that they begin to ease off after you've been taking it for a while and that it can give you many more years.
Please keep in touch and let us know how you get on. We are always here for you.
Bless you! Thank you again for your kind words. I’ve only been on it since December and this Friday will be my Fourth dose. The side effects were immediate really for me but I am sensitive to drugs and there side effects worse luck. Take good care Jolamine. Xxx
I have started enhertu and 10 days after the first dose still feel sick and fatigued ,the worse is the constant nausea feeling and not wanting to eat basic foods .feel as if have no life and feeling soo sorry for myself
Hi HopeSprings, do you know if Enhertu is now available on the NHS in England, or are you on a trial. I know it is available in Scotland. I have heard of people having to pay £9000 every 3 weeks, even having to hire the use of a chair, which is awful. Not many people would be able to afford this, it seems to be all about the money. I recently signed a petition, asking for it to be made available to people in England. I am HER2 positive, if in the future I suffer with matasteses, I would need this drug. I have a friend who is on a trial and having it, she has a first week which is very tough! Xx
