Hi everyone and thanks for having me.

I’ve been battling cancer now since mid-2021. It’s synovial sarcoma and originated on the bottom of the left lung. They’d removed the lower lobe in surgery to stop a bleed from the tumour and tried their best to mop up but the cancer cells inevitably spread to the sites where the surgeons removed tools and where a chest drain was. It’s now all within the left torso in numerous places and it’s annoying to say the least.

I've been told it’s incurable but I am continuing with chemotherapy regimes with my current regime of trabectedin. Hopefully it is effective for as long as possible to help me out. I’ve been too unwell to work since late 2021 so I spend most of my time at home, trying to manage all sorts of pain. It feels like there is a big wheel of symptoms too as each day or two, I get something else to deal with. Then it starts to improve before the next one begins.

The main reason for joining is because after 2 and a half years of strength, I’m fed up, tired and losing hope. I know this is mainly mental and the tiredness is both mental and physical, but I will continue because I am determined to either prove doctors wrong and hold out until something does clear me, or, I prolong my time as much as I can to enjoy time with my family and friends. But I think being in a place where I can talk about things and where others can relate is so important. So, here I am!

I don’t know how often I’ll be online because it’s new to me but this is probably one of the best places for me to be.