Hello, I’ve been diagnosed with Polycythemia and don’t know anyone else who has it. Depending on what I read or google and who I speak to I should either already be dead or I’ll live for another 30 years.
Part of me doesn’t really want to know the truth and I’m living on the assumption nothing will change but I’m wondering if I should prepare myself or my family for whats to come or if I should cross that bridge when I come to it.
As you can see I’m petrified! Anyone going through the same thing?
