My partner was diagnosed with Extranodal KT/T cell lymphoma (nasal type) in 2022. He was treated with chemo and RT and was told he was cancer free in May last year. At that time I noticed he had.a bit of a rash on his side. Pale pink and very slightly raised. Because he'd just been given all clear we agreed he should monitor it. He mentioned it to a doc and was told it was probably due to the chemo drugs he'd been given. Hence weren't unduly concerned..

He had been advised to call hospital if he had any concerns. As the rash was worsening he then did this, left messages but no-one got back to him. A chance encounter with a consultant dermatologist who was shadowing his GP (he was there regarding another matter) led to a biopsy. This concluded the ENKTL had indeed returned, to his skin. So by now it was over 5 months and spreading. He was told it is superficial and a PET scan suggested it wasn't elsewhere.

He's just recently started immunotherapy (Nivolumab). Has been told aim is still curative which is good to hear. If the drug works he may go on to have a bone marrow transplant. I'm so worried and feel annoyed it should have been picked up sooner. His blood tests showed nothing and they told him when he was first diagnosed his bloods were clear then too. Begs the question, what is the point in using blood test as indicator?

Anyone have any similar experience, would welcome hearing from you.