Adenocarcinoma of oesophagus

I was recently diagnosed with an adenocarcinoma of oesophagus. Subsequent PET-CT scans etc and it was shown to be at least 10.5 cm in length - between the oesophagus and stomach junction. Currently undergoing Chemo and on round 2.

The tumour is currently operable with no spreads to other areas - would be good if anyone out there is having or had a similar experience. The operation would be to remove part of the oesophagus and part of the stomach (or all of it) to create the best chance of cure.

Would be good to hear others journeys too.

Thanks.

  • HI S3rg10gu3r0,

    A very warm welcome to our forum.

    I am sorry to hear that you are currently having chemo and awaiting surgery. There are a number of people on the forum, who have undergone this. Unfortunately, I can't be of any help, because I have has 2 bouts of breast cancer and don't know much about this type. While you are waiting for someone with more experience of this, you might find it helpful to search our forum for previous posts on this topic.

    If you go to the Search forum box at the top of this page and insert Adenocarcinoma of the oesophagus, you will find them. Feel free to reply to any that interest you, or to ask further questions. The only experience I have of Oesophageal cancer is with a friend of mine. He had surgery in 2006 and is still doing well.

    I sincerely hope that all turns out well for you too.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi,

    Great news that the scans have shown it hasn’t spread AND that it is operable. I hope you’re coping with the chemo and that the side effects aren’t too severe.
    If you click on my username, my own journey with OC s documented there.

    I was never a candidate for surgery, but I’m sure someone will answer that part of your query now we’ve got Christmas and New Year behind us.

    My only useful advice is about coping with chemo. My mistake was assuming that side effects were inevitable and unmanageable. After my third round I felt awful and I stupidly left it a few days before asking for help. The worst of my side effects were managed with a reduction in the nausea and the diarrhoea and constipation (yes, together!). I managed to keep the weight loss under control by having high calorie homemade smoothies and liquidised soups plus chocolate and cake. My oncologist advised me to eat as much of anything that I could keep down and to stay hydrated. Even when you’re frequently vomiting, if you drink enough water some of it will be retained (apologies if anyone was eating when they read this!).

    Good luck with your tretment
    Dave

  • Hi. It’s good to hear that your tumour is operable and there has been no spread.
    I was diagnosed with the same oesophageal junction cancer at the end of April last year.  My treatment plan was four cycles of FLOT (July/August), surgery in September followed by more FLOT (November/December). I think this is fairly standard treatment. The surgery was an Ivor Lewis oesophagectomy, and mine was a combination of keyhole and open ,My last chemo was just before Christmas, on 22 December.
    I had a good response to the first round of chemo and surgery so was advised that the latest round of chemo was like extra insurance of an already good result. I completed 3 cycles of 4 before stopping due to an accumulation of side effects. 
    I found this site really useful for general information (what to take to hospital, what people ate after surgery etc) and being able to reach out to others in a similar situation, but don’t forget that every situation and person is different. I phoned the chemo and surgical nurse specialists for advice and help with symptoms and side effects when I needed to.
    Feel free to ask anything and good luck. 

  • I was diagnosed with adenocarcinoma of oesophageal junction in 2008. As o had metastases my liver, i was not a candodate for surgery. I was treated with ECX chemo only. Well here I am all these years later! A recent full body PET scan for an entirely different reason showed no sign of this cancer!

  • Hi Janwes23,

    That’s amazing! I went through something similar in late 2013. 

    EOX (E – epirubicin (epee-roob-i-sin)O – oxaliplatin (ox-al-e-plait-in)X – capecitabine (cap-site-a-been) rather than ECX (E - epirubicinC - cisplatinX - capecitabine. 

    Best wishes
    Dave