thymus gland cancer - anyone been there and done that?

Hi,

I've just found out I've got Thymus gland cancer. They're not quite sure what flavour yet, but as it's pretty rare, there's not a huge amount of info about it (although what's there says I've lots of reason to be hopeful).

Apparently large mass around my lungs, that they've thought was a large heart for 4 years. Has anyone been through the surgery?

I'll be honest: I'm not looking for horror stories, just any tips and tricks to smooth out the bumps in the road.

Any and all help is appreciated.

S

  • Hello Sal34, 

    I am sorry to hear about your diagnosis - there is information on our website on thymus gland cancer which I hope you will find useful. It does mention that it is a rare cancer and there's a paragraph too on the thymectomy and if you have any questions about it, feel free to call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. 

    I thought I would also mention ThymicUK, a support group for people with cancers of the thymus gland. They aim to address the feeling of isolation that can come with a rare disease. They share information and experiences as well as support each other so it might be worth having a look at their website. 

     I hope that you will find others on our forum who have had a similar diagnosis before and have been through the surgery for it and are happy to share tips and experiences with you. You can search on our forum for relevant threads by using our search function which is located at the top and entering keywords such as 'thymus gland cancer'. I found for example that  posted this thread over a year ago having then been newly diagnosed and could therefore be a good person for you to chat to - feel free to comment on her thread and share your story if you wish to do so. 

    Best wishes, 

    Lucie, Cancer Chat Moderator