Just diagnosed with bile duct cancer, cholangiocarcinoma

Hi

I live in Cornwall and just found out I've got bile duct cancer.  I've been waiting for a diagnosis since April, and I found out talking with my consultant, who thought I already knew.  It had been very difficult to speak to any doctor or consultant, as they are often so involved in treatment tests and operations that having time to speak to patients is difficult down here in Cornwall. 

Does anyone else here have the same cancer at all?  Is live to hear others experiences.  I know the outlook isn't good, but I'm staying positive at the moment. 

Thanks for reading 

Parents
  • I'm sorry to hear about your diagnosis. My husband has just had the same news, which is very shocking. We live in a city, London, and have had very fast referrals. No cure, but treatment offered. We'll find out more tomorrow.  Just four weeks from seeing the GP to meeting with oncologist to plan treatment. However, in those few short weeks T has been at A&E twice due to a) severe pain, and b) a bad reaction to heparin for heart arrhythmia (discovered on first visit to A&E), resulting in three nights in hospital. So that has speeded things up for us.  Best of luck in getting treatment. Be very clear what you want, and be very persistent to get it.  Keep on asking When? What? What benefits and what possible risks?  

  • Thank you for your advice.  I'm hoping my treatment will start next month after I've recovered from the gallbladder removal. 

Reply Children
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