I’ve had a biopsy for a possible genetic targetable mutation for my bile duct cancer and may be offered Pemigatinib. The possible side effects may out weigh any benefit. Has anyone experience of this drug/chemo?
I'm sorry to hear about your diagnosis and the anxious wait you now have for your biopsy results.
Hopefully some of our members who have had Pemigatinib as part of their treatment will be along soon to share their experiences and advice but in the meantime, if you'd like to discuss this with one of our cancer nurses, you can contact them on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.
Thank you for your reply. I’ve read plenty about Pemigatinib, the consultant said it wasn’t worth it for a possible couple of months. Couple of months from when? I was given 4 to 6 months last January, the first line chemo hasn’t worked. I’m waiting for an answer to the recent biopsy as not enough material was taken initially. Wouldn’t you think they could have tested long ago? Everything has taken so long, I haven’t had any chemo since August. Sadly I don’t have faith in the NHS and would like to know a patient’s experience of Pemigatinib.. I’m not of the illusion that I will beat this. Maybe they can’t offer me anything, then I needn’t worry. I’ll be on the “golden pathway”. Whoever knew there was such a thing?
I now find I have a genetic mutation that means I could be offered Ivosidenib. It’s not been approved by NICE, but could be approved early 2024. Obviously now the scenario is different from my first question.
