Hello moorlander52 I have just joined too and although I haven’t yet been diagnosed with Myeloma, I am absolutely petrified that I may have it.

A year ago I saw my GP because my urine is really frothy. I’m female and in my thirties and otherwise I thought I was generally healthy. They did an albumin test and it came back negative and also a blood test for kidney function which wasn’t great but was ok (80 eGFR). I never thought much more about it as nothing was followed up by my GP after that however the foamy urine continued and most of the time covers the toilet.

I then read it could be a sign of Melanoma so I’m now absolutely terrified. I have been back to my GP and they are sending a 24 hour urine kit for me to do to look for other proteins. As albumin has been ruled out both a year ago and again a couple of months ago when I saw my GP for something else I’m now really worried the only other possible cause for my constant foamy urine is Bence Jones protein. The only other issues I have are twinges in my left shoulder that are like a mild ache which randomly comes and goes but I’ve had that for a couple of years and although it hasn’t been xrayed the physio I saw said it was my rotator cuff.

i feel a bit of a fraud commenting when I have no diagnosis and am just assuming something but I’m so scared and I can’t find any other explanation. Any advice would be great fully received. X

Hi. I’m just going through investigation I saw that on the Bence Jones test my proteins are at. 0.21 but immunoglobulins are normal and I’m absolutely terrified I have this. Everyone says try not to worry but that’s easier said than done 

Hi Sam00190  after my last post I have had a 24 hour urine test and my protein levels are very low and well within range and so I’ve been told no further analysis is required. I still worry about it but not much more I can do right now. None of the blood results I’ve had from various tests have showed any concern so I’m stuck with no diagnosis of anything. It’s definitely easier said than done though when people tell you to try and not worry. I worry all the time. Are you having any further testing? What symptoms do you have? I really hope you get good and reassuring results back if you are x

Hi Sam00190  after my last post I have had a 24 hour urine test and my protein levels are very low and well within range and so I’ve been told no further analysis is required. I still worry about it but not much more I can do right now. None of the blood results I’ve had from various tests have showed any concern so I’m stuck with no diagnosis of anything. It’s definitely easier said than done though when people tell you to try and not worry. I worry all the time. Are you having any further testing? What symptoms do you have? I really hope you get good and reassuring results back if you are x

I’m anemic and low iron and  always have been . I went in to see if I needed to start HRT and then they decided to do a liver function test and bench johns. Apparently my white cells are raised but I have had dental infections and been on 3 courses of antibiotics and been using the normal cocodamol and ibruprofen to help with dental pain so apart from issue with teeth I feel fine. 

I have low iron but I’m not anemic with it. Your white cells could easily be due to your infection I would have thought. Were your liver test results ok?