Hi Emma,

in 2016 I was diagnosed with invasive breast cancer.  Following that surgery I had to have a 2nd surgery as the margins were not clear as there was an area dcis. This was successfully removed and I then had radiotherapy and Tamoxifen for 5 years.  Fast forward to this summer and a routine mammogram detected an area of high grade dcis in the same breast.  2 weeks ago I had a single mastectomy with immediate diep flap reconstruction.I am very grateful it was found and that it wasn’t yet invasive and fingers crossed my risk of further bc in that breast is reduced,

Michelle x

Hi Michell, thank you for your reply, I had my results yesterday and the DCIS is back, they said high grade which is confusing because I thought DCIS was grade 0. My consultant said the tamoxifen hasnt worked and I know have to have a single mastectomy and removal of lymph nodes. Having some other scans and tests, I cant take all of the information in   

HI Emma,

I am so sorry to hear this. There are in fact 3 grades of DCIS - low, intermediate and high. Have you discussed any further treatment following surgery? I am not surprised that you are having difficulty taking this all in. I actually found my double mastectomy easier to deal with than my lumpectomy - here's hoping that you will too. Do you know what other tests you're to have and are you going to have reconstruction?

Please keep in touch and let us know how you get on. As you know, we are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine, they are doing a full body bone scan, genetic testing and something else that I cant remember , I will go back to clinic in 2 weeks , they said the would discuss reconstruction etc. Its a lot to take in and I think I just *** down when they the Consultant said its back. Im thinking over the coming weeks I need to get myself as mentally and physically strong as I can to face the coming months. Thank you so much for responding, you have been so lovely x

Hi Emma,

Hgh grade means it is fast growing, but dcis is considered stage 0 because it is still contained within the ducts.  If it becomes invasive and do begins growing outside the ducts then it is stage 1, 2 …. depending on size, lymph node involvement etc.   Some dcis never becomes invasive.  I got my results yesterday and they found an area of triple negative invasive cancer which doesn’t respond to hormone therapy so it looks like I’ll be needing chemo next ️ ️ ️:(

Hi Emma,

It's hard to pick yourself up from this, but you're right. The stronger you are both mentally and physically, the better you'll deal with this. I'm glad to hear that there are plans to do these other tests too, as you'll feel more reassured once you've had them. You've been through this before, so you know that you can do it - It's just a thought to be starting all over again. 

Please keep in touch and let us know how your other tests go. I am always here for you.

Kind regards,

Jolamine xx

Hi Emma,

It's hard to pick yourself up from this, but you're right. The stronger you are both mentally and physically, the better you'll deal with this. I'm glad to hear that there are plans to do these other tests too, as you'll feel more reassured once you've had them. You've been through this before, so you know that you can do it - It's just a thought to be starting all over again. 

Please keep in touch and let us know how your other tests go. I am always here for you.

Kind regards,

Jolamine xx