Hi Rach,

A very warm welcome to our forum.

If you search for ET in the box at the top of this page, you will find some posts from a number of people with ET, which you might find interesting. I am so glad to hear that you have managed by plodding on with this for 32 years so far and I hope that you continue to do so for many more years to come. This does sound somewhat puzzling, but perhaps someone with more knowledge than me, can offer some answers. You could always phone one of our nurses and see if they can offer any suggestions. They are available Mon - Fri, from 9.00am - 5.00pm and their number is 0808 800 4040.

Please stay in touch and let us know if anyone can shed any light on this. We are always here for you.

Kind regards,

Jolamine xx