Terminal lung cancer

I have had immunotherapy for 1 and a half years and now my cancer is stable which is great, I am rather dependent on steroids which my consultant is trying to wean me off but it effects me quite deeply in as much as I become tired and depressed.  My main reason for talking to you is that I get very hot sweats especially about 6.00 in the evening when I’m about to have dinner which stops me wanting to eat, anybody else have this problem?  I’m well past menopause as I’m a young 77.  I really appreciate the treatment I’ve had from the NHS which has been remarkable I didn’t think I would last this long and the treatment wasn’t harsh like chemo, so I’m grateful for that.  Has anybody got the side affects I have? Regards Gilly

  • Thank you Jenny I will give it a try hopefully he can sort something out that goes with all the other tablets

  • You sound like you have a really supportive family and I'm glad things are easier for you now.

    I'm a bit at a loss as to your stage and grade if honest as T1c is tumour is between 2 and 3cm, small in my own personal (without medical knowledge) opinion, the only thing i base this on is mine was almost 7cm hence T3b.

    However with you saying you think that's a smaller one to the main one in the other lung it makes me wonder what size that one is and if that's the primary why the stage and grade of that one is not recorded, if you get what I'm saying. My suggestion would be ask your cancer nurse or oncologist for more information if you really want an understanding of it further.

    I do actually personally know a lady who's terminal as you put it, hers is in her bones now but she's still very well positive and having successful treatment to keep her going, So with that in mind I'd like to think you've a good few years of your husbands cooking to enjoy ahead of you.

    Keep on that dummy too if it's kept you off the fags. Must confess i enjoyed them too at the time, in hindsight foolish but then again my friend who's terminal never smoked in her life. Her oncologist claims based on the genetic make up of her tumour it's most likely been caused by air pollution!!

    You sound very upbeat with it all. As per Jenny's suggestion i would see your GP or again ask your cancer nurse if there's anything they can give you to help with the flushes. Bit rubbish having to do menopause twice so to speak even if it is immunotherapy related.

    Keep your chin up as they say and if you need a shoulder....... i have two.

    Xxxx