World torn apart

Hi all. My name is Jon, and my beautiful wife was diagnosed with terminal breast, lung and bone cancer on Wednesday. The prognosis we received on Thursday was that due to the damage already caused, worst case scenario was that she could only have weeks left.

The Drs decided to do an MRI on her brain and there is evidence that it may have spread there, and the timeline was changed from weeks to days.

She had back pain since the beginning of August this year, and she decided to go to our GP who prescribed pain killers as it was "muscular". She also had pins & needles and numbness on one side of her face and left hand. She was told to book a blood test which she did.

The pills she was given didn't work so she went back, and they imcreased the dosage. 

By the time the apppintment for the blood test came through she could hardly move. I needed to help her get into/out of bed, dress her, help her shower and whem she went to the toilet. She called the Drs saying that she wouldn't be able to attend as she wpuld struggle to get there as the surgery was too far away from a car park. She was given a different number to call to arrange someone to come to the house to take it.

When she called the number she was told that she did not qualify as she wasn't "house bound" as per there rules

We called a Dr to do a house visit as the pain was becoming worse, but she just prescribed different medication,  which still didn't work.

A couple of Sundays ago we went to the nearest NHS walk in centre, and when we finally saw a Dr he was already writing out the prescription. 

She was booked in for physio on Wednesday who took one look at her and told her to get to A&E at a different hospital as her problem was medical not physical. We wen the same day and to start with, the impression we got was "why are you here with back pain"?

It was only when they did an external examination that they thought she had breast cancer but on having an x-ray,  CT and MRI of her tordo  it showed that it had attacked the liver and spine. 3 of her lower vertebrae had virtually collapsed which explained the discomfort and severe pain.

So went into A&E with my wife having severe back pain on Wednesday to finding out on the Saturday that she may only have days to live.

My mother in law moved in with us last year and is in her mid 70s. We have 3 children who have left home.

Really struggling to come to terms with it and keep thinking about how I will cope both emotionally and financially. So far we have had no support from the hospital. 

  • Hi Jon, 

    I noticed you haven't had a reply just yet so I just wanted to welcome you to the Cancer Chat community and reassure you that your post has been seen.

    I'm so sorry to read what has happened. I can't even begin to imagine how painful and heart-breaking this must be for the both of you but I'm glad you've reached out to us as many of our members have also, sadly, been on this journey with their other halves and loved ones so they will really understand the emotional turmoil you are contending with, so you are not alone, and I'm sure it won't be long until some of them stop by to share their experiences and offer you their support.

    I'm not sure if you have come across Marie Curie, but they are a charity that offers care and support to anyone who has a terminal illness, including their loved ones. I hope some of the information they have on coping with a terminal illness will help but if you'd like to speak with them further, do give them a call, as they will be able to offer advice on what practical and financial support may be available to you as well.

    We're thinking of you Jon and are sending all our strength to you and your wife at this incredibly difficult time.

    Kind regards,

    Steph, Cancer Chat Moderator

  • I am so sorry for this awful news that you and your wife have been given. I really hope that some sort of medication will help ease her pain. Maybe someone at Marie Curie, as suggested, can help with listening to both of you, and helping somehow, and also they might be able to contact someone in the hospital to give you the support that both of you need.

  • Hi Jon,

    I am so very sorry to hear of your wife's diagnosis and understand just how devastating this is. My mother-in-law died 4 years ago. She had been bed bound with heart complications and dementia for 6 years prior to this. My father-in-law, who was 97 at the time, cared for her at home and, she couldn't have been looked after any better anywhere else in the world. He still drove his car for the shopping, did all her laundry and even did his best with the cooking - something that he'd never had to do in his life. They had been married for 70 years, so we were not surprised when he went downhill quickly after she passed. We took him to his GP on 5 different occasions, with horrendous back pain. Each time he was prescribed anti-inflammatories and a gel to rub in. On the last occasion, the GP he saw referred him to the hospital to get checked over. 

    He was admitted straight away and within 2 hours, we were told that he had terminal cancer. It had spread throughout his body and they gave him 2-3 weeks to live - he lasted for 5 days after this. Please do get in touch with Marie Curie, as they will be able to advise you of all the practical and financial support that is available.

    Please keep in touch and let us know how you get on. We are always here for you.

    Thinking of you both.

    Kind regards,

    Jolamine xx