Back in 2014 I had LAR which removed the tumour after chemoradiotherapy and up until March this year I have always been told I was NED. Advised if I reached 10yrs It would be disease free. However, it turned out to be stage 4 recurrent bowel cancer in my right pelvic area affecting most organs there. The most pain seemed to be from the tumour encompassing the sciatic nerve and lower spinal nerves. After 10 sessions of radiotherapy, which was originally declined, I am mostly pain free (odd twinges etc). I finished the radiotherapy just over 2 weeks ago and have waited patiently to see Oncologist about a course of chemo to stop any more progress. I expected a space from finishing one and starting the other, but so far I haven't received an appointment so far.
I am normally a very positive person and my response to being told prognosis was likely 9-12 months simply took surgeon by surprise as I said to my wife (who is already dealing with a terminal cancer) think we better get partying fast. Even though pain is non existent now, I am starting to struggle when I feel twinges in my right flank and sometimes it is difficult to breathe, and my mind immediately goes to could this be the cancer spreading to my lung.
At present I seem to spend a lot of time researching various trials and I have enquired from a few for the criteria to be included. I have this information for the Oncologist -who is excellent but not totally up to speed with all the various trials around.
I think I need other distractions to stop me getting anxious - something I have never been troubled with before. Any positive suggestions are very welcome!
Many thanks, Paul