Mesothelioma

Hi I've been diagnosed with Mesothelioma and at the moment being treated with  Imunotherapy just had my third treatment is there anyone who would like to chat?

  • Hi BigO my husband was diagnosed in June & has just had 10 radiotherapy & 1st immunotherapy last week.  He has been extremely tired & burning up one minute & freezing the next.  How are you doing ?

  • Hi Redone 71 sorry to hear he's having some bad side effects I'm not only after doing a bit of gardening I feel a bit warm but then fine after a little rest. Then get back at it as far as tiredness my sleep pattern is not good as you can see from my message 3.10am I'll have a short siesta in the afternoon I try to keep as busy as I can.

    The wife and I are getting in as much travel as we can in-between treatments

    Really nice to chat hope everything goes well 

    Speak to you again 

  • Hi Big O - how’s it going.  My husband has his CT scan tomorrow to check if immunotherapy is having any effect.  He looks & feels well & we have managed a couple of trips to Greece & Lisbon in the last few weeks (got to be done ).  Hope you are still managing to travel.

  • Hi Redone71 similar to yourself had a scan about 5 weeks ago unfortunately it has grown a little so having another 3 treatments scan again to see if it has changed so fingers crossed.

    We have just come back from Belfast which was a good trip lovely City and people 

    So looking at another trip before Xmas as you said got to be done 

    All the best to you chin up

  • Hi Big O - sorry to hear it has grown a little.  I will keep everything crossed that there is some improvement following your next 3 treatments.  Take Care - love to you & your wife x