Waiting to get the biopsy

Hi all, sorry if this is a long one.

Im 46 and a while ago, between 8 and 12 months ago (i cant remember when exactly as i had a lot going on) I found what can only be described as a black head on my vulva (not sure if its classed as the vestibule area or not as its kind of in between the inside and outside anyway i was about the size of a nib of a ball point pen and i thought nothing more of it, except i couldnt "get it" due to location.
Anyway a couple of weeks ago, i was shaving using a mirror this time and spotted the "blackhead" had grown to about 5-6mm,asymettrical etc etc I immediately panicked as i know spots/blackheads dont grown to that size :/ I did what ya shouldnt do and researched. Based on its appearance (flat and almost looks under the surface, not raised not dry etc etc) its not seborrheic keratosis (no sunlight gets ther), not SCC, BCC or VIN so that only left melanosis or melanoma. So i went to see my gp who took one look,while i told her of how it had grown etc. she immediately said i was being referred to the hospital and theyd do a biopsy on it. I was kind of relieved not to be dismissed but also a bit more worried then as id hoped shed say its melanosis. I left the room in a bit of a daze. wondering how long id have to wait, so waited a few days then went back in to the surgery to ask if they knew if it was an urgent referral (2 week wait) or if itd be upto 12 wks, so i knew for my own peace of mind, the receptionist read out the letter and said "Urgent Referral - suspected cancer" well my knees almost went. Not saying that ive def got it but i half expected it to say eg "unknown lesion/growth possible biopsy required" or something to that effect. So ive been put on the 2week wait I tried to call the hospital today to find out when as i hate waiting, but it was a public holiday so the dept was closed :/ 


Anyway ive not even had the appointment and already im bricking it. Usually i think of the worst case scenario so if it happens then its not such a shock, but this is terrifying me if im honest. Mixed emotions. Im already a bad sleeper, but this is making it worse. Now im wondering if the pains during and after intercourse were due to the menopause or not, then the nausea, frequency to urinate, feeling full even though not eaten, sometimes no appetite at all, the hot flushes which had disappeared for months but back again etc etc. Im probably putting 2 and 2 together and coming up with 10 but....this is frying my brain.
Has anyone else had a biopsy down there? if so what was it like? (i hate needles, big woose) Did the put a cream on you to numb the area BEFORE the needle (yes i am that big a woose lol) How long did you have to wait for the results? Im in Scotland if that makes any difference. I have a family history of Cancer, mum had a BCC on her face, aunts on my fathers side and nan, had anything from lung,to breast to ovarian (im certain my nans spread throughout but conflicting stories on that one), which the gp also knows about.

Any help or reassurance would be greatly appreciated, sorry again for the long story (its a bad habit of mine:/ ) 

TIA 

  • Hi there , first of all I’m sorry that you are going through this . Just to let you know , a USC referral is urgent suspected cancer , that means that you should ( according to government guidelines ) be seen in two weeks , however there is a backlog so it may take longer. It is mainly the terminology used to get you seen quickly. A normal referral can take anything from 3-12 months depending on the speciality . A biopsy is over really quickly , just take some Paracetamol before you go . I really hope all is ok x 

  • Thank you for your reply.  I wasnt sure if the 2 week wait was for cancer or not, as ive had appts the same day or week for xrays or bloods for various things. 
    Im now doing this alone, i have grown kids and some close friends but...my rship has broken down partly due to this, he started going "weird" on me after i told him (true colours of my partner, of 2+ yrs,  have shown i guess :/ ) so that hurts on top of the stress i'm already under. But strangely i am not even upset about that, all im focusing on is this biopsy and the possible outcome.

    Im going to call the hospital soon to see if they have a date for me so i can at least focus (some)...thank you again.x

  • OMG, i missed call time for local hospital dept, so called my gp, to be told i have an appointment at another hospital approx 40 minutes drive away from me on 23rd August1! thats almost 4 wks away and thats an emergency referral :(  Im going to call my local hospital up later when the line is open again and ask if i could be put on the cancellation list, as i dont honestly think i can wait that long,my anxiety is through the roof as it is (and current medication im already on isnt helping) :'(

  • Hi , reading these posts there does seem to be a backlog but I would do as you said, ring up and say you’ll go in at short notice in case there  is a cancellation,. Sorry to hear of your relationship breakdown some men run scared! We don’t have a choice! I really hope you get an appointment soon to put your mind at rest xx

  • Hi

    I've had loads of biopsies taken from my vulva. They were all done under general anaesthetic as day cases - so I'd go to hospital in the morning then I'd be home by the afternoon. It can be quite sore afterwards so make sure you've got some painkillers in. I had to wait 6 weeks for the results. 

    Xx

  • Thanks for your reply, i hope your results came back all clear.

    I called my local hospital today but apparently they dont have a cancellation list else theyd be overwhelmed with patients waiting. She asked what the referral letter said and told her i hadnt had one yet as it was the gp who told me the date, but advised her what gp's letter said, so she checked there and then for cancellations, there wasnt any, and said she would keep my details on her desk with a note so any cancellations that came in she'd call me, which was nice of her. So now to wait.

    6 weeks for results seems long too, especially if already waited a time for the actual appointment :/ But ill bare that in mind and ill ask at time of appointment too. Ill take a cushion afterwards as well (if i still have to go to the other hospital further away as i dont imagine the drive back would be great lol) 

    Thankyou again

  • Thankyou, yes i spoke to a friend today who was diagnosed terminal several yrs ago, but recovered somehow. She said 6-7 weeks wait is good. Im not so sure i agree especially for emergencies lol 

    But yeah it is what it is with the now ex. I supported him so much, even when had my own struggles going on, but when ive needed him...he disappears on me. Hurts now more than normally would but as i said, im not focusng on that just yet, by time ive got chance to think about it weeks will have past so hurt dissipated :)

    Thanks again for your time and help x