Oesophagus cancer

Hi my mum was diagnosed with oesophagus cancer in November 2020 at the age of 82, she went through 7 weeks of radio and six rounds of chemo and on an NG tube for 4 months, I moved in with my mum together with my daughter for four and a half months to get her though it, she became cancer free in May 2021. But unfortunately she started having memory problems whilst going through treatment and in September 2021 she was diagnosed with Dementia.  Since then my sister and I have cared for her but unfortunately her oesophagus has always had problems and in January this year she went onto Ensure shakes as we were told she had dysphasia. But I think me and my sister both thought there was something more but her oncology team didn't. Since about February she has been sleeping constantly, even after she wakes up, she goes down stairs a goes to sleep in her chair until my sister would come to do her morning drinks and tablets and she would go to sleep after she left and would not wake until the afternoon and that continued for months 

On May 21st my mum started with me for a break as I have just got over breast cancer and my sisters husband has had his prostate removed due to cancer two weeks ago. Whilst my mum was staying with me she just wanted to sleep in bed, and every time she got up she poop aw  just wanted to go back to bed, so after 2 days I phoned 111 and they dispatched an ambulance. They said your mum is severely dehydrated and needs to go to hospital.

My mum is still in hospital 7 weeks on, she is 85 now, on doing a CT scan they noticed a tumor in her cardia and have told us it's actually a recurrence of the oesophagus cancer, and she is stage 4 terminal. She has had a stent fitted and is now drinking and eating which is lovely to see her fo after 8 months of her having so much trouble, but while in hospital she has caught hospital pneumonia, C Diff and yesterday COVID. My mum is a very strong person and a very good healer but all this has battered her dementia and although she has never forgotten her family she seems to have gobe in to a depression which is very unlike her, she was also told about her cancer and prognosis whilst on her own without us present, I had already brought in my LPA and ask them not to tell her anything unless one of us was present. 

I just wondered what the future will look like, she will be going to a nursing home once she is free of infections, and it has been agreed she will not return to hospital. But I don't know what the next few months will look like, my mum has forgotten about her cancer and constantly asks to go home, it's a very sad time. She is very well loved and is a wonderful mother and it's been a terrible time with all the infections and we are hoping she leaves ASAP 

  • Hi DeannaT,

    Welcome to Cancer Chat. I'm so sorry to hear of the situation with your mum - it sounds like you've all been through a lot with this and I'm sure it must be incredibly difficult.

    Hopefully her mood will improve as the infections improve, and then hopefully she can be a little more comfortable when leaving hospital. With any questions about what to potentially expect, do of course keep speaking to your mum's doctor/specialist.

    I hope you're getting on OK among all this and that you have others around you to talk to. Keep looking after yourself and remember we're always here for support on the forum if you need it.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Thanks Ben, her mood today was a lot better, and although she has mentioned her cancer to me since I had to tell her last week, she did tell a nurse that she has cancer so even though she has dementia it has obviously stayed in her mind. I'm hoping she will be moved to a nursing home by the end of the week once she is clear of COVID and we can make the best of what she has left with her own possessions around her.

    Deanna