Hello Bythebeach, 

I am not sure whether you were diagnosed with a small bowel neuroendocrine tumour or  a large bowel NET but I found this fairly recent thread from another member Alwaysforever who posted about their experience dealing with neuroendocrine tumours in their small bowel. Feel free to respond if you would like to share your experience. Unfortunately our forum terms and conditions specify that our members are not allowed for privacy reasons to name oncologists on the forum but we do have a private messaging facility which may be useful to you if you would like to have a more private conversation about this with another member. 

It's definitely a good idea to seek a second opinion if you feel your oncologist is too slow at responding or being too negative. You can find out more about getting a second opinion on this page.

I hope you manage to find a good recommendation and get to have another opinion soon. 

Best wishes, 

Lucie, Cancer Chat Moderator