HI

Of course.  About 7 weeks ago I started feeling a little bit tired and noticed my glands were swollen.  I went to the doctors after noticing 2 weeks later a hard lump.  They sent me to hospital where the Consultant thought it was my parotid gland.  Anyway after lots of tests it appears it's in my right tonsil and lymph glands.  So unbelievably out of the blue and a huge shock.  Still can't quite believe but determined to stay positive and beat this x

Hi JuJu

i have recently been diagnosed as well. My started as a lump in the left of my neck which they thought was just a cyst and drained....but PETCT and then MRI scan showed more. Had my local MDT team meet with a specialist one after they took the tumour from the tonsil and now waiting to see the specialist team next Thursday which will be followed by tonsil and good tissue being removed as well as cancerous lymph nodes

im positive as well, just needed to know what I'm dealing with and good to have a chance that we may be able to share journeys...I'm a little older than you, 63

Hi Tigernymph

I'm sorry to hear that but it is good to hear you are staying positive too.  I met my specialist last Friday to discuss treatment and am having radiotherapy and chemotherapy for 6 weeks.  I don't need to have surgery.  I'm glad I know what I am dealing with now ... the waiting was awful.  I'm starting treatment in about 3 weeks after some more meetings and scans.  It's very scary isn't it but I gave a great support network and family so that will help me lots.  It's also good to speak to people going through the same thing.

I hope your meeting next Thursday goes well.  Let me know how you get on and keep positive. It's nice to be able to share our journey xx

Hi Juju

I saw the consultant today-they want to initially get me in to have the tonsil removed and good tissue around it to double check what’s going on and keep me in hospital for a couple of days. Depending on outcome it will then be a bigger op on my neck to remove lymph glands and the (ottiginal) cyst and they will keep me in for a week. He explained all the potential nerve issues, right around to the shoulder which has rather unnerved me….and then radiotherapy. They wanted me in early July which I can’t make so suggested mid July but he’s a way then, so will be early August….sitting here and getting my head around what’s to come and how it will impact on my throat, voice, taste etc

Meanwhile, am reading up on healthful things to set my body up to deal with it all as I am already losing a bit of weight from it-looking at more green and leafy and adding chlorella powder to get my blood iron rich 

Hownare you getting in with meetings and scans Juju?