So I got referred to haematology 3 and half yrs ago with night sweats which started after my daughter was born, I battled for ages to get them looked into as kept getting fobbed off that they were
Due to breast feeding
Post natal hormones etc
But I stopped breast feeding to stop it a I was drenching the bed every night needing full bed change daily and still same
Went back to docs - referred to endocrine all bloods and hormones levels normal,
Went to Gp again said its still ruining my life asked if anything else - explained dull ache in groin sometimes
Found swollen lymph nodes in groin and neck, raised platelets so referred urgently to haematology
Had ct showing multiple raised lymph nodes and sightly enlarged spleen
Had a biopsy from groin lymph node- just showed inflammation so said would contine to monitor
Then kind of got left over covid with only face to face appts and also another pregnancy and baby
Finally had a face to face follow up in Jan
Could still feel myraised lymph nodes in neck and groin but said none over 2cm
Requested repeat ct as been a couple of years
Chased appointment for results as was 3/4 weeks later
Said lymph nodes and spleen hadn't changed size since last scan so happy no lymphoma and discharge back to my gp to monitor
Tried to explain still had night sweats amd swollen lymph nodes I could feel in neck and groin- no longer breast feeding and baby 6 month old
But they wasn't interested as wasn't lymphoma
But did say ct scan reported changes on lungs due to covid which I had but wasn't Overaly poorly with and also left breast nodule which they recommend urgent referral to breast team for bisopy
The Dr said if I hadn't heard anything within 3 weeks to chase with gp as it had been asked for as urgent referral
It's now been about 5 weeks, my gp is a nightmare to get through too so sent ane consult and they asked me to contact hospital
Now I dont know who to contact and feel like no one is interested in following up
Fyi- I can't actually feel any breast lumps so must be deeper
Any help or guidance would be great
