Recovering from chemo radiation for squamous CC base tongue

My mother is 9 weeks post chemo radiation for squamous cell carcinoma in her lymph node (size approx 5cmx4cm) primary site base of tongue. She had her tonsils removed. But it's 9 weeks since end of treatment and won't eat. She had ng tube for a few weeks but she got a steroid which made her eat for 2 weeks, they had to stop the steroid as the effects of it were too risky to use long term. Now she's off the steroid again she's back to not eating. It's mentally draining for our whole family. She's still in hospital since December but going downhill with no nutrition. Constant infections. How can we get her to eat? Does it ever get better? 
ps. The consultant did say when she was diagnosed that it was curable but she hasn't had her post treatment pet scan yet. 

Parents
  • My mum has been diagnosed with the same thing. Hasn't eaten since January, spent weeks in hospital until there was a proper diagnosis. NG tube fitted but not tolerable due to where the tumour is located so had a peg fitted. Treatment was supposed to start but now they can't do radiation. She's been in Christie's as had an infection so out back treatment and then sent back home to recover after infection and then ended up back in hospital again as the tumour is making its way down her airway so they have had to put in a tracheostomy. My mums treatment is now due to start on Monday it's immunotherapy (Pembrolizumab) she has to have this every 3 weeks and it can go on for 2 years. This just seems like such a long time honestly don't know what to think heads a mess. 

Reply
  • My mum has been diagnosed with the same thing. Hasn't eaten since January, spent weeks in hospital until there was a proper diagnosis. NG tube fitted but not tolerable due to where the tumour is located so had a peg fitted. Treatment was supposed to start but now they can't do radiation. She's been in Christie's as had an infection so out back treatment and then sent back home to recover after infection and then ended up back in hospital again as the tumour is making its way down her airway so they have had to put in a tracheostomy. My mums treatment is now due to start on Monday it's immunotherapy (Pembrolizumab) she has to have this every 3 weeks and it can go on for 2 years. This just seems like such a long time honestly don't know what to think heads a mess. 

Children
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