I have been undergoing investigation since November 2021. I had left flank pain and what felt like a swelling in my back with consideral pain in my lower groin. I had various scans, as well as an endoscopy (sliding hernia) Ultrasounds and Ct scans with dye, where I was diagnosed with hydrophenrosis. I had a JJ stent in August 2022 which was removed 8th September. Another ultrasound in the October where I was asked if the stent was still in situ? as a blockage was evident. I then had a renal scan which showed a flat graph of take up and the scan showed that the kidney was only working at 18%. I also had to provide stool sample which resulted in the need for a colonoscopy due to blood and inflammation sisal polpys were removed (have yet to be advised on results of these) On Tuesday I was due to have a uretescopy however they were unable to complete this as unable to find uretha opening.
I have been told that I should be receiving an appointment for a further renal scan.
I understand the need for the investigations as have lost over 4 stone in weight, but do not feel that anyone is actually communicating with me. I will not be speaking to consultant for a further 8 weeks (telephone consult) - what do I ask?
Both my parents have had cancer my dad stomach and my mum has had sclc (in remission) bladder cancer (ongoing cystoscopy 6 monthly) breast cancer ( being treated with tamoxifen) .
Any advice most welcom