Appendix Cancer

Would just like to pass on my story to hopefully give others in the same situation, hope.

 

I was admitted into hospital November 22 with an appendicitis, all went well with the procedure and I was discharged the next day. The following week I received a call from the hospital asking me to come in and see a consultant, I thought it was just a follow up but it was not. The colorectal consultant informed me that when they removed the appendix it was sent to pathology, they found a cancerous tumour in it. He advised that I have a CT scan and a colonoscopy followed by a right hemicolectomy.

 

I had the CT scan a few days after Christmas and the colonoscopy in January, no cancer was found in either, so I was hopeful that the planned surgery was not now necessary. But that was not the case as the consultant explained that until that section of colon is removed they could not test the lymph nodes.

 

I was admitted into hospital February 6 and had the surgery the same day, even though it was classed as a major procedure I found it not too bad, my recovery went well and I was discharged 4 days later. The following week I received a call from the hospital saying that all the tests from pathology had come back negative. I can’t tell you what a relief that was, I was told the there was no need for chemo and that they would contact me in 12 months to have another CT scan and colonoscopy. So at the moment, it looks as if I am cancer free.

 

 

  • Hello Tommy01, 

    Thank you so much for taking the trouble to come here and share your story. Your detailed account of your experience will be useful to others who are currently going through the same thing. What a shock it must have been for you to be told that they had found a tumour when they removed the appendix. 

    I am glad you recovered well from the surgery and that all the tests from pathology came back negative. What a relief it must have been for you! It's great that it's all been dealt with and that you didn't need chemotherapy. It's also good that they are keeping an eye on things and you will be having another CT scan and colonoscopy in 12 months time but it's wonderful news that you are now cancer free!

    We love to hear positive stories like yours so thank you for sharing it with us and our community. It will really help others who are currently going through something similar. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Hi  

    Just wondered how are you doing? was so good to be able to read your story as I’m going through exactly the same thing as you have. My appendix tumour was found whilst I was having surgery for som ng else. This month I will have a CT scan, colonoscopy and a right hemicolectomy. Like you I wasn’t sure if I would have the operation if my scans were clear but surgeon said they made a decision he MDT meeting to do the right hemicolectomy regardless to rule out any spread. One minute i’m fine about it the next it feels a bit overwhelming. Hoping my outcome is as good as yours

  • I am absolutely fine, it was the correct decision to have the surgery as it has put my mind at rest knowing that I am cancer free, without it I would have always had that niggling doubt in the back of my mind. The worst part for me was waiting for the results to come back, it was only a few days but seemed much longer. Do not worry about the surgery, it is a straightforward keyhole procedure, I was in some pain for a few days, the worst was trying to get out of bed but once on my feet I was fine. I am now back to my normal routine and feeling great. Wishing you have the same outcome.

    Kind regards

    Tom

  • Hi Tom

    Thank you so much for your reply! Glad to hear you are feeling back to your normal self. You’ve definitely made me feel a lot less anxious and now know that having the surgery is the best decision. I have everything booked in for this month already. So good that you didn’t have to wait long for your results either, as waiting is the hardest part. 

    All the best to you! 

  • Glad I could be of help, anymore questions or concerns, just ask.

  • Hi Tommy01  Thank you for sharing your journey. I am glad to hear you are well.   It’s so helpful to hear other people’s experiences. My husband was diagnosed with goblet cell adenocarcinoma 6 week ago,  since then his CT and colonoscopy have all come back clear.  We have an appointment coming up to discuss a  right hemicolectomy and chemo.  We are expecting the op to take place but after reading your experience wondering if that may be enough and the Chemo may not be necessary.  Do you have any advice concerning the Op and consideration of Chemo?   Many thanks for your help!

  • So sorry to hear about your husband, I followed my consultants advice and opted for the surgery purely for the reason it would always have been in the back of my mind that something may have been missed and it could come back. Even though it is classed as a major procedure I didn't find it too bad, I was on my feet walking around the next day, the only real pain I had was getting out of bed, once on my feet I was fine. I was lucky as I did not need chemo, when the section of colon and lymph nodes where examined there were no cancer cells found. The worst part for me was waiting for the results to come back, it was only a few days but it seemed a lot longer.  If you have any more questions or concerns please don't hesitate to ask.

  • Thank you for replying,  it’s helpful.  Especially where you had exactly same situation as my husband.   We are trying to have as much information as possible so we know the questions to ask at the next appointment.  The last appointment we were so unprepared and couldn’t take it all in.  We are trying to think ahead so not to feel so overwhelmed.  We will totally take the consultants advice and I am happy to hear the Op was not too bad.  Thank you again and I wish you continued health for the future.  

  • Just a quick update, I had a surveillance colonoscopy yesterday and all was good, they took a few routine biopsies but they don't envisage any problems. Hard to believe it's been a year since I had my surgery.  Hoping that others have a similar outcome.