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Would I have been booked for a CT scan if doctor wasn't sure

Kellie1
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Hi everyone, I'm new to this but, I have been having trouble swallowing for a good while now and feel tired all the time, so the GP sent me for endoscopy on Wednesday. After the procedure, the doctor who did it and a nurse took me and my partner to a side room and said that she found something to cause concern in my esophagus and that everything would move quite quickly now. To be honest I kind of zoned out as she was talking because I was in so much shock, I think I'm still in shock. So I'm booked in for a CT scan Wednesday coming, she said they wanted to make sure it wasn't anywhere else. I suppose now I'm just terrified because I feel like I've been left in limbo. My mood is all over the place and I think I'm a bit in denial, but then she didn't actually say cancer. Would they have booked me in for a CT scan if they weren't sure? Also my biopsy still hasn't came back, so as I said, I'm in limbo and terrified. Has anyone else had this experience?

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    Hi, I was diagnosed back in September and when I was taken into a room they didn't use the word Cancer, it wasn't until my CT and biopsy came back to determine what type of cancer and what grade it was that they used the term Cancer.

    like I said the CT and biopsy determined the type and stage of the cancer.

    it's so scary playing the waiting game. Try and stay positive for now xx

  • Offline in reply to Shelby2128

    Thank you for writing back to me, the waiting and not knowing is terrible. I'm kicking myself now for not being able to think of questions when I had the opportunity, but my mind went blank.

    I hope everything moved quickly for you to get treatment and that you're coping OK with it xx

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    Hi Kellie,

    I am replying as my husband was diagnosed with Oesophageal cancer in October 2020 aged 62. He had FLOT/operation/FLOT and although it wasn't easy he is doing well - fingers crossed. 

    In answer to your question yes a CT scan is the next step. There are a lot of tests but at this point my advice would be to try to take it a step at a time and avoid Google at all costs. I used the cancer support nurses at Macmillan when things got difficult. There are a few of us who share on a post under RayB which was started by him back in 2020. There are a lot of threads with varying outcomes so you may not want to read/join just yet or not at all or you may start your own on here with people who are going through similar at the same time. 

    The NHS are amazing and you will know more when you get your results.

    I truly wish you well.

    keeping the faith

    Milly 

  • Offline in reply to Milly58

    Hi Milly58, thank you for taking the time to reply to me. I'm very glad to read that your husband is doing well now, that must have been such a difficult experience for you both to walk through. My CT scan is today at 1.30pm, I know they won't be able to tell me much but I'm glad things are moving quickly. With a few phone calls, I found out who my consultant was yesterday, I know that my results for biopsy are back, but won't hear what they say until after CT scan. This is so frustrating. 

    Yes, Google is a terrifying experience! I went on for a few minutes and decided that was enough. So I decided to use Google for more constructive info like finding difficult recipes for soft, high calorie food, that would be suitable for me to eat. I have found thus cancer research forum very helpful so far, it has given me comfort knowing that I am not alone. I will check out those threads that you spoke about, thank you.

     

    Wishing you and your husband the best of luck for the rest of your journey together xx

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