Peritoneal metastatic colorectal cancer

Hi, I am 42 years old and was diagnosed with stage 3 Colorectal  cancer in Feb 2021. I had oral chemotherapy with radiotherapy in April/May 2021 in preparation for surgery in October 2021 which resulted in a permanent colostomy. Scans in October 2022 showed a return of cancer in my prostate, and a follow up PET-CT showed many small deposits spread throughout my peritoneum. I'm told there is no longer a surgical option, and was referred for palliative chemotherapy. I am currently 2 sessions into a 12 session routine of FOLFIRI chemotherapy over 24 weeks. So far side effects have been mild, a bit of eczema on my face and some nausea, i changed anti sickness drugs as they were making me talk in my sleep and hallucinate. Mainly tiredness. I'm maintaining a good appetite. I'm struggling to get any answers with regard to time, I know it's so difficult as there seems to be no definite answers for each individual. The hardest part is trying to plan for the future, fortunately I have great family and friends supporting me and I find the best thing is if I wake up feeling ok then take advantage and enjoy the day. I just wondered if anyone might read this who has similar experience as I don't know anyone else. Also happy to support and share with anyone from my side. 

  • Hello Hopper,

                            sorry to read that you have been going through the grinder, its just a tough slog with no great leaps forward anytime soon, in a race with Brian the snail my money would be on the snail, however both get to cross the finish line.

    Therein lies the biggest uncertainty, and one that can drive you demented if you allow it too much oxygen.What will be is going to happen and there is only a limited amount you can do to change that, mind fretting about it is akin to providing your worst enemy with comfort and support, and actively arming it with the weapon of stress

    You are certainly on the straught and narrow when you write about seizing the moment when you feel well, you need to garner these good ones to offset the dross that will definately turn up to poop on your party.

    Planning for the future is sticky, but not planning could be even stickier if it leaves you in a zombie state with no ambition and festering in a wallow of self pity,, NO, No, no, the trick is to have goals that push you forward to your limit but not beyond, recognise that setting something aside when you need to rest,is not the same as giving up, and returning to it as soon as. Sure things can take longer to achieve, but the kick from it done is such a positive spur forward.The thing l found was perspective, if you can work with that, it really does work with you.

    l am now 9 years on from colon cancer that decided to holiday in my liver, had the joy of a stoma, had and still have the double edged pleasures of a reversal. Through this period l have achieved all of my future plans, just discovered different routes and travel options to get me to my chosen destinations.

    Try not to be overhard on yourself, because your body needs you to be its best friend at the moment, it does read like you are well on the way to understanding that, just needing the reassurance that l and others that have trodden your path can attest to that there is an exit from the dark tunnel of treatment and yes the sunshine is there if you open your eyes.

    Hope you continue to cope with the treatment, just keep putting one foot in front of the other,

                                                                                                                                                           David

  • David

    Thank you for your message, your words are much appreciated.

    Very best.

    Hopper