Hello, this is my first time posting. I was diagnosed with Hodgkin's lymphoma stage 2B 4 months after having my baby girl. I knew something wasn't right before and during pregnancy as I had a horrendous cough which was very unexplained and terribly itchy skin but neither my GP, midwife or chest specialist (that I'd been referred to) put two and two together to realise my diagnosis. After finally pushing the GP and 4 months of strange blood results I was finally referred to haematology and diagnosed. My consultant said he thought I'd had the 8cm tumour in my chest for a few months but I knew differently. Turns out, 6 months into my treatment, they discovered an old x'ray from the month before I fell pregnant which shows my tumour which had been missed by both the person writing the x ray report and the GP. This apparently has gone to governance and I have absolutely no idea what that means. 

Anyway, I had ABVD and after 2 cycles I had a PET Scan, the scan showed a huge reduction in size of the tumour but it still had two small active areas at the top and bottom. I was given the choice whether to continue on ABVD for 2 more cycles or switch to esc BEACOPP. I chose to stick with ABVD. The next PET Scan showed no difference but no spread or growth so the consultant suggested radiotherapy for a month. My latest PET scan shows there are still areas of activity. My consultant said I don't need further treatment but they will review in 3 months with another PET scan. I honestly don't know how to feel, he used the words "let's what and see what happens" I mean what does that even mean? He said he thinks it's gone but my body is responding slowly to the treatment. I'm just so full of emotions. I just wanted to move on with my life but I still feel like I'm in limbo. I have another consultation next week. What questions should I be asking ? How is best to deal with the uncertainty? I've been so strong and positive up to this point but I'm really struggling mentally with this latest news.