Hello everyone, diagnosed with colon cancer, having chemo

I was diagnosed with colon cancer in July - operation in October and just in second seek of Capecitabine chemotherapy - just tablets, no infusions - 8 cycles. T4 tumour, no lymph node involvement but vein invaded. I have suffered with peripheral neuropathy for years and I am so scared that the chemo is already aggravating it. I worry that if I have to stop treatment my cancer will return!!

  • Hello gforce17,

                             starting out on chemo with peripheral neuropathy is not the best, but as you allude too, stopping it is fraught with porentially serious consequences. 

    l inherited mine on my post op infusion tablet regime. l pretty much knew it was coming by the end of session 4 of six since l started dropping things and could hardly walk with the pain.But by that stage having gone through pre op tablets alongside radiotherapy, and surgery to bowel and liver, l was not going to risk it all by stopping short.

    thankfully the hands have improved but l am stuck with the feet.At least my brain has given up the futility of constantly reminding me of the fact, and l have learnt to trip and fall more gracefully with time. l only really notice in the evening or if l get tired, but it has to live with me and not the other way round.

    l am sure you have made your chemo team aware and that they will be monitoring your situation closely. Its been several years for me now, and l hear that they have made good steps forward in more accurately assessing individuals ideal dose rates rather than throwing the kitchen sink and contents at it in the hope that enough will stick.,so hopefully your treatment will be as much as you need but no more, and that you can cope without triggering any crisis,

    Wish you well for a good outcome and speedy recovery,

                                                                                                David

     

     

  • Hi David,

    Thanks so much for this information. It really has made me feel more confident that everything can, and will be managed in the best way possible. I've lived with the PN for many years and learnt to cope with it well but the thought of it getting much worse was my primary concern. You've helped me to think positively that I will be able to cope with whatever I'm left with.

    Best regards,

    Grahame.